Advanced Stages of Huntington's Disease Caregivers Handbook

Smoking

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Advanced Stages of Huntington's Disease
Caregivers Handbook
Smoking
Half jokingly and half seriously, physicians who are experts in caring for people with HD have referred to HD as "one of the smoking diseases." Certainly a very large portion of people with HD smoke cigarettes. People with HD often view it as "one of the last pleasures I have left." Smoking becomes symbolic of independence.

Smokers and their caregivers are faced with a number of problems. Some folks with HD have an altered sense of hot and cold. Their fingers are often burned lighting cigarettes or smoking them down to the butt.
 
 Impaired judgement can make them unaware of the danger of burns to clothing, ashtray fires, or lighting the cigarettes of friends who are themselves unsafe smokers.
 
The movement disorder makes it unsafe to use and dispose of matches and lighters. Impulse control problems may drive them to take another person's lit cigarette right out of his mouth.
Caregiver Tips
  • Take seriously the smoker's emotional need to smoke.
  • Discuss the use of nicotine patches
  • Build a reward system to encourage him to quit.
  • Use large ashtrays that are solid, sturdy, and untippable.
  • Limit smoking to a well-protected area.
  • Purchase nonflammable clothing, furniture, and floor covering.
  • If necessary, have the smoker wear asbestos vest.
  • Install extra smoke detectors.
  • Use a "smoker's robot". It holds a cigarette to prevent ashes and embers from being dropped

Next Page: Medical Issues

Additional Resources
The following information is not from the Advanced Stages of HD Guidebook.  It provides links to products to help with someone with HD who smokes:

 

 

apron.jpg

 

Smoker’s Apron

Samples: AbleData.com http://snipurl.com/dia8

The Smoker's Apron is a fireproof apron designed to protect individuals with upper extremity or cognitive disabilities from burns or accidental fires due to smoking. This full-sized, lightweight apron covers the wearer's lap and chest and is designed to prevent smoking materials from falling between the chair or wheelchair and the wearer.

Remote Smoker Device

Made by Robin Keller whose wife has HD.

smokingdevice.jpg 

Safe Smoking Device & Ashtray

Sample: http://nfss.site.yahoo.net/nc28870.html

Safe Smoking Cigarette Holder and Ashtray Allows a cigarette to rest safely in the holder that is attached to an ashtray base. Features a 36in (91cm) tube with a mouthpiece. Safety for persons that choose to smoke when normal mobility is hindered.