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Advanced Stages of Huntington's Disease Caregivers Handbook
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Home
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Advanced Stages of Huntington's Disease
Caregiver's Handbook
By Jim Pollard
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Download and print this document:
Compliments of Huntington's Society Canada
Caregiver Tips, Preventing Weight Loss,
Some High Calorie Recipes
About Swallowing, Coughing, Choking & Aspiration
Pneumonia,Creating Culinary Masterpieces, Feeding Tubes, Caregiver Tips
Preventing Falls
Helmets & Padding, Walkers, About Fatigue, About
Wheelchairs, Avoiding Constraints, About Beds, Caregiver Tips
Importance of Exercise, Sample Exercise Plans |
Cognitive Changes
Understanding Cognitive Changes, Slower Thinking, Difficulty
Learning, Difficulty Organizing Action, Need For Routine & Consistency, A Neurological Lack of Self-Awareness, Poor
Judgment, Difficulty Waiting, Mistaking The Movement Disorder For Misbehavior
Depression, Anger
Understanding the Need,
Helpful Tips
Sleeping, Screaming, Sweating
& Temperature Variation, Urinary & Bowels, Seizures,
Fevers, Contractures & Chorea
Caregivers Need Care
Societies and Organizations
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For anyone reading this material, you might also be interested
in the below. This information is not from Advanced Stages of HD handbook. |
Feeding Tubes - What Is
A Feeding Tube? When To Consider One. Feeding Tube Decision in HD, Tube Feeding in Advanced Stages of HD,Using Baby Foods,
Oral & Dental Care, Jean Miller Articles & Checklist and a ton of resources including charts to help in care.
2nd Edition On-Line copy. Links to the Chapters of this Guide
covering Genetics, Movement [chorea], Cognitive changes, psychiatric issues, driving, smoking, sleep, etc.
Physical & Occupational Therapy
for Huntington's Disease -Excellent
HDSA document on Physical & Occupational therapy in early, middle and late stages of HD discussing common motor problems
& strategies, choosing a wheelchair, strategies for cognitive functioning, restraints, sleeping arrangements, memory &
planning strategies, safety in home, eating, hygiene, dressing, contractures, etc. plus appendix on products.
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Wonderful information written by Joanne Hunt, RN covering approaches
to care in HD, personal & physical care needs, safety, mobility and seating, swallowing & nutrition, dental care,
toileting and dressing tips. Each section is also available in Word format for printing or sharing.
This section deals specifically with Swallowing problems associated with HD. It covers the
description of problems in swallowing, therapies and products, questions to ask/FAQS, articles written specifically for HD,
Safety & Warning Signs, brochures, special diets, the 5 levels of food consistency, testing procedures used to determine
swallowing capacity, and more. Many items are available in Word for printing or sharing. Additional information and tips will
be added as time permits.
Provides people living with HD excellent resources which
address the various aspects of behavior in someone with Huntington's Disease. Includes tips on how to help. |
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