Huntington's Disease
Early identification
of HD-related problems at work is very important, for the purposes of securing accommo-ations at work, and eventually
disability.
Phil Hardt, the HD Person of the Year 2001, has helped many families with suggestions
on compiling information to help with applying for disability insurance(s) for someone with Huntingtin's Disease. Read
"Phil Hardt On Social Security" which is also available in Word to print and share.
Disability Information
An overview of the federal and state programs available including Social Security
Disability Insurance (SSDI), Supplemental Security Income (SSI), Medicare, State Health Insurance Counseling and Assistance
Programs (SHIP), Medicaid and Medicaid Waviers, COBRA and more.
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Make sure you read about SSA'sThe
Blue Book for professionals.Specifically the following reasons for awarding permanent disability "11.17
Degenerative disease not listed
elsewhere, such as Huntington's chorea, Friedreich's ataxia, and spino-cerebellar degeneration.
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This section tells you what your physician should be writing to
help you file for disability for your-
self or a child! Specifically prepared
for physicians and other health professionals.
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This edition explains how each program
works, and the kinds of information a health professional can furnish to help ensure sound and prompt decisions on disability
claims. Make sure your doctor is following these instructions! |
Medicare
Medicare can be confusing and answers to questions can be hard to find. Get the
answers to your questions online. Medicare Rights Center (MRC). Explains how to enroll, what
Medicare covers, what preventive care benefits are, what your options are, chosing a medicare plan, solving problems and more.
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If you do not get the care you think
you need under Medicare, don't take no for an answer. Appeal
the decision. It's easy and free. |
Medicare helps pay your doctor and hospital bills and provides some nursing home
and other coverage. Explains who is eligibble, what the coverage is, about the Medicare savings programs,
how to appeal [including forms] and more
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Read about the benefits, get the forms
you need to file, make an appeal. |
Confused about Medicare HMOs? HMO Flash, a series of 28 counseling
tip-sheets, is the definitive reference guide on Medicare HMOs. The tipsheets are organized into seven
categories which explain the basics, tips for choosing an HMO, how to enroll/disenroll, how to appeal, how
to get help for the chronically ill/disabled, how to coordinate care and care management.
Medicare Rights-Home Health & Hospice - People with
advanced illnesses may have special skilled nursing or skilled therapy needs, or may need help to manage uncomfortable symptoms.
They may prefer to receive care at home, and families may need assistance with care giving and counseling responsibilities
to help them cope with advanced illnesses . Provides a link to a Consumers Booklet on your
rights, Medicare Hospice Benefit Guide, explains Home Health Care, Hospice, Eligibility requirements and provide tips to talking
with physicians about home health and hospice. Provides tips on what you can do if you are dissatisfied or
denied care.
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What
can you do if you're disatisfied or denied care? |
16 pages available to print out.
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The 6 month rule is gone! Respite
care no longer limited to twice
a year! |
Professional Guide To Medicare-Home Health & Hospice -MRC Technical Guide - to increase awareness
and understanding of the Medicare home health and hospice benefits among the professionals patients rely upon to make health
care decisions. (HD social workers, HDSA Chapters, etc.).
Explains Home Care, Home Health
Benefits, Hospice, Benefit comparisions, talking with doctors, choosing an agency, resources for caregivers and more.
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This
technical guide is designed to increase awareness
and understanding of the Medicare home health and hospice benefits. |
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Medicaid
Medicaid Explained and Medicaid Resources provides
information on is eligible, long term planning care, treatment of assets for married couples and more.
Social Security
Self explanatory. Provides a listing of addresses, phone numbers, etc. of social
security offices in each state
Program information on Family Benefits, Children with Disability, Disability, Supplemental Security
Income (SSI), Survivor Benefits, Veterans and Retirement Benefits. Explains definitions of disability,
what records you will need, how much you can get, how to apply and more. Includes link to all pertinent forms or publications
you will need.
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What these
programs are, how to apply, appeal, forms, etc. |
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Supplemental Security Income (SSI) and Supplemental Security Disability Income (SSDI). Also link to booklet on what "Retirement/ Survivors" need to know. |
Click on any box to estimate your disablity or survivor benefits.
Social Security benefits can provide much needed support for you and your family when you retire, if you become disabled,
and when you die. This web page is designed to help you better understand your Social Security protection as you plan for
your financial future.
Applying for Supplemental Security Income [SSI] - Explains what SSI is, who
is eligible, how to apply, things you should know, what information you will need to apply, what happens when you do apply,
back benefits, if your eligible if you live in a public or private institution, and more!
Supplemental Security Income [SSI] is designed to help aged, blind, and disabled people, who
have little or no income; it provides cash to meet basic needs for food, clothing, and shelter. Find out
if you are eligible, what payments are, etc.
Social Security-Children With Disabilities - This booklet is written primarily for the parents
and caregivers of children with disabilities and adults disabled since childhood. It illustrates the kinds
of Social Security and Supplemental Security Income (SSI) benefits a child with a disability might be eligible for and explains
how they
evaluate disability claims for children.
Veterans
There are a wide range of benefits available to
veterans with disabilities. For example, special disability insurance is available for those veterans who have VA life insurance.
This disability insurance includes life insurance premium waivers as well as total disability income provisions.
Explains compensation rates, claim processing, Neurological
disease benefits, availability of case managers, the 2 different types of disability benefits under VA insurance policies,
waiver of premiums, Total Disability Income Provision Rider [TDIP] and more!
Other Resources
On average there are 50 to 70 programs available to individuals per state.
See what you're eligible for.
Provides federal, state and some local private and public benefits for people ages
55 and over that may pay for some of their costs of prescription drugs, health care, utilities, and other essential items
or services.
You enter simple information, such as your age, income, and ZIP code, and it
will identify programs you might qualify for. Also link to new Benefit Rx resources.
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Helps find programs for people
ages 55 and over that may pay for some of their costs of prescrip-tion drugs, health care, utilities, and other essential
items or services. |
Links to:
Disability Resources
Disability Organizations & AGencies
Government Benefits
State Medicaid Offices
Medicaid Map by State
Medicaird/Medicare Waiver Program
Federal Information in Other Languages
CHILDREN
Summary of SSI program
Disability Resources for Children
Neighborhood Legal Services, Inc.
BROCHURES
The ABC's of Government Disabilityes
Medicare Rights Center Bookstore
Medicare Survival Kit
Medicare Basics Etc. |
