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Facing Huntington's Disease
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Facing Huntington's Disease
 
A publication of the Huntington's Disease Association
January 1984 S.N. DALBY
London K.A. EVANS
Revised March 1994 R.N. YALE
 
This valuable resource, originally offered by the Huntington's Disease Association, UK was available from the Mass. General Hospital website and has been linked to almost every HD website on the internet. Early in 2004, it disappeared from the Internet. Fortunately, for HD families, someone saw my plea asking where I could find this document and it was sent to me in PDF format to share with you! 
 
 
 
Chapter 1
Medical Facts 
    Reactions to the diagnosis
    Planning for later stages of the illness
 
Chapter 2
How HD Is Passed On
 
 
Chapter 3
Learning The Diagnosis 
Chapter 4
Young People At Risk
     Facing the reality - a balanced view
     Learning that you are at risk
     Marrying someone at risk
     Whether or not to plan children
 
Chapter 5
The Course Of The Illness
Part I
 
Part II
 
Further Sources of Help