 "Bryan's Dad Has
Huntington's Disease" - HOPES For Kids requires the Macromedia Flash
player. It will take a few moments to load, depending on your connection speed. Please be patient. (On a 56K modem, it should
take about a minute to load.) Stanford gave me permission to copy this document for printing. Click here for the Word Doc: Bryan's Dad Has
HD 25 pages. Or click here for the PDF version: Bryan's Dad Has
HD
Children Of A Parent With HD - Contents adapted from
a presentation by Donna Palumbo at the 1997 HDSA National Convention. Or Download WORD Doc: Children of Parents With HD
Compilation of Talking To Children Articles &
Resources Articles Children of Parents With Huntington’s Disease, The Best Way to
Discuss To Discuss HD With Children, Talking With Children About Huntington's Disease and Other Resources
with graphics, compiled into one Word document, 17 pages, for printing and sharing.
From the Scottish Huntington's
Association webpage who has one of the best resources for
young people living with HD. Visit their special pages for young children under 14 and their page for teenagers.
Q&A's For Young People Living With HD Another excellent resource from the Scottish Huntington's Association . Geared more for teens and young adults, addresses What is Huntington’s Disease?,
How does HD affect people? How do you get HD? Why does HD take so long to develop? Tell me about genetic. testing, How do
I cope with living with HD? Looking after Yourself, How do I cope with being at risk? and What if I want to have a family? |
Telling the Children
HDSA Brochure written by Shirley Dalby, 2 pages. How, why, when to tell children about HD. Publication #902 The 1st copy is FREE.
Call 1-800-345-4372 and ask for Anita Mark-Paul Extension 16.
Children HD Books
that can be ordered - Also see
Compilation of Talking To Children Articles & Resources for descriptions and some excerpts from the below books.
$18.50 including S&H This wonderful book is filled
with quotes, poems and stories from those whose ages range from 8 to 22. An excellent book
for all young people who live in a family where someone has HD.
Is Daddy Ok? A Kid's Look at Huntington's
Disease by Janet L. Howes, ACSW - This book is ideal for kids, age 6 through 12, who have a parent, family member, or other adult
in their life that is experiencing Huntington's Disease. Price: $12.95 each plus S&H of $2.00 for first copy, .75 cents for additional copies.
Michigan residents add .06 percent sales tax. Make checks or money order payable to Delos
Publishing and mail your order to:
Delos Publishing
PO
Box 986
East Lansing, MI 48826
Talking To
Kids About HD - $14.00 - 45 pages - by Bonnie L. Hennig, MSW, LCS A book for people who know children with HD in their family. This link is to more information on the book and
to place your order.
Free Pamphlet
I am a child psychologist and also have Huntington's Disease
in my family. I have developed two booklets that help young people deal with their feelings about
HD. These booklets are designed for two age groups (5-10 and 11-18).They are designed to be used with an adult or in a support
group with an adult leader. They are free to anyone who sends me their snail mail address. My name is Paula and my e-mail address is: Paulabhouck@aol.com
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