Advanced Stages of Huntington's Disease
Handbook - By Jim Pollard - Download the PDF document. Access the valuable information on all the chapters of the informative
handbook covering important subjects such as Communication, Eating & Nutrition, Preventing Swallowing Problems, Preventing
Falls, Personal Care, Cognitive Changes, Understanding Changes in mood, Smoking, Medical Issues
and Caring for the Caregiver.
Download 26pgs document. Genetics, behavior, abuse, family dyamic alterations, disablity
issues, communication strategies, eating & swallowing, home safety, sleeping arrangement, tube feeding, study groups and
more.
Jim Pollard's excellent brochure providing an overview on an HD patient for Certified
Nursing Assistants (CNA's) which can also be used to provide temporary caregivers at home, at day care centers, etc. Download
English, French or Spanish version.
This valuable resource, originally offered by the Huntington's
Disease Association in 1984 still offers some of the BEST information for families living with HD. Learn about HD Medical
Facts, How HD is passed on, on learning the diagnosis, information for young people at risk [such as marriage and children],
the course of the illness and more. Download the 20-page PDF document and share it.
The Juvenile Huntington's Disease Handbook-A Guide for Physicians, Neurologists and
Other Professionals 2001. NOTE: HSC's Juvenile Huntington's Disease A Resource for Families, Health
Professionals & Caregivers is also available for printing on this link. |
Wonderful information written by Joanne Hunt, RN covering approaches
to care in HD, personal & physical care needs, safety, mobility and seating, swallowing & nutrition, dental care,
toileting and dressing tips. Each section is also available in Word format for printing or sharing.
Excellent HDSA document on Physical & Occupational therapy in early,
middle and late stages of HD discussing common motor problems, strategies, choosing a wheelchair, strategies for cognitive
functioning, restraints, sleeping arrangements, memory; planning strategies, safety in home, eating, hygiene, dressing, contractures,
etc. plus appendix on products.
2nd Edition On-Line copy. Links to the Chapters of this Guide covering
Genetics, Movement [chorea], Cognitive changes, psychiatric issues, driving, smoking, sleep, etc. A must have for any family
living with HD and their primary physician! Download PDF version for sharing.
Provides people living with HD excellent resources which address
the various aspects of behavior in someone with Huntington's Disease. Includes tips on how to help
With Behavioural Disturbances in HD by Pete Ellis, Understanding
Challenging Behavioral in HD by Julie Snowden, Understanding Behavioral Changes by Dr. Edmond Chiu and Behavioral Changes
In HD~A 2001 Study |
