Where available you'll find links to the individual
HDSA Chapter, Affiliate, Support Group or Center of Excellence (CoE) website and/or newsletter. You might want to check them
out periodically, as most have some excellent updates or information on Huntington's Disease especially if they publish a
newsletter.
Information on the Huntington's Disease Society of America
(HDSA), including website, contacts, link to The Marker HDSA'smagazine, etc.
Fast Connections
National
Support & Resources
Advocating & Supporting HDSA
Receive Updates
Publications:
Towards A Cure, Family Guide
Series, etc.
Research
A non-profit, basic-science organization dedicated
to the cure of genetic disease. 100% of all publicly donated funds is directed to the support of biomedical research.
HDF focuses on Huntington's disease.
Fast Connections
Gene Veritas' passion in life is to stop HD and other neurological diseases from devastating
individuals and their families.
Looking for something quickly? Link to a few dozen internet
search engines that may help you find it
|
Huntington's Disease Advocacy Center was started to help
family members affected by Huntington's Disease find answers to the many questions that need to be answered. Information &
FAQ sheets for caregivers, those at risk, and those that have tested positive for HD.
Fast
Connections
Jerry Lampson's HD Lighthouse has had over 1 Million visits since it's inception.
Among the many things HDL offers is current information on Scientific
findings in HD, clinical trials, resourceful documents on Huntington's
Disease and a message board.
Fast Connections
MGH Huntington's Disease Forum - Go to "Forum Jump" to Huntington's Disease . This is THE original on-line HD message board!You must be a member to post, but not to read. It's free!
NINDS
National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda,
MD 20824
(800) 352-9424
HOPES is a team of faculty and undergraduate students at Stanford
University dedicated to making scientific information about Huntington's Disease (HD) more readily accessible to the public.
Fast Connections
Gerrit R. Dommerholt
Ineternational Development Officer IHA
Callunahof 8
7217 St. Harfsen, Netherlands
Tel:
31 - 573 - 431595
Fax: 31 - 573 - 431719
Email: iha@huntington-assoc.com
Established in 2004, the Euro-HD Network will provide a platform
for professionals and people affected by HD to assist working together throughout Europe to facilitate natural history studies
and interventional trials, meeting high standards, thus helping on the road towards a cure of HD. |
