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Pictures Can Speak Louder Than Words! |
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Special video's or articles about young people with HD like the
Smrtnik/Fiore family, NYA members Katie Moser, Lauren Holder and others. |
Moving video's by young adults living at-risk for HD like Shana Martin, Mindy Maher
and others. |
Chris Furbee's Huntington's Dance, HD Helping Hands, and other moving tribute video's
made to honor family members with HD. |
A few media articles about Huntington's Disease, HD Families and more.
HD Helping Hands, Sue Wright's Introduction to Basics of HD etc. |
Caring For Someone With HD
Instructional videos to help with the caring of someone with HD. Video
on Communicating with the Disabled and Caring For a Parent. If you have a link to a video that would help
HD families or the professionals who support them, please let me know. Email Jean
Miller |
Excellent resources with educational video's about HD like Stanford University
HOPES, the Dolan DNA Center
Watch some really cool & interesting video's on RNAi, Histone Deacetylation,
Stem Cells, Drosphilia and more! |
Video's covering several symptoms like depression, bipolar,
seizures, etc. It would be nice if video's specifically HD were available.
Respiratory therapist shows how to use a spirometer, the importance
of standing for people wheelchair bound...and more as I find any that might be helpful . |
Assistive technologies, adapting a home, and more
Insurance
The Basics of shopping for insurance covering Medicaid, Medicare, etc. and informational
video's on free drug programs.
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Information and video's on the basics of the importance of vitamins, nutrients, etc.
Hydration, liquid supplements, etc.
Only found one video its on smoothies. If I find any more, they'll be added here |
A pharmacist explains how different medications, why doctors
prescribe them and common side effects of the drug. Found several medications used in HD, unfortunately not
enough! |
Watch some video's to help you meditate or relax, even smile.
Then see what level of exercise you might want to try. There's even some to do at your desk! |
Video's on Woody and Arlo Guthrie. Some great singing, stories, concerts and photographs. |
HD brings tragedy into this world on a daily basis. This link is to
media articles covering homelessness, going from hopelessness to hope, and the Carr family. |
This site is dedicated to the efforts of those people living with Huntington's
Disease who have taken precious time out of their life to create awareness about the disease! Whether it has
been done at the local level through fund raising, support to others living with HD, through local or national media
news coverage, or through their own personal documentary efforts, the rest of the HD community can not thank you enough!
Today with resources like YouTube and MySpace some wonderful video's are now on the Internet that you can use to help create your own
awarness for Huntington's Disease. Whether it be at school, at work, or with
other relatives or your neighbors or friends, directing them to anyone one of the video's on this website will probably
do more to educate them in a few minutes then anything you've tried before.
Remember anyone with a video camera can make their own
HD documentary to share and to help create awareness for Huntington's Disease. If you make a video you'd like to share,
please email me Jean Miller.
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