Huntington's Disease For Families

About The Author

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Interest and Involvement of the Author

 Joanne Hunt, RN

I graduated with a diploma in nursing from Victoria General Hospital School of Nursing in 1993. I am presently working on my Bachelor of Science in Nursing through distance education from St. Francis Xavier University. I worked for four and a half years with Northwood Homecare caring for many clients with different illnesses acute and chronic, mostly palliative care. For the past 4 years I have worked at the Nova Scotia Hospital in acute care, Short Stay and Assessment Services working with clients acutely ill or in crisis situations and completing comprehensive admission assessments.

As a health care provider, person at risk for HD and a care giver of a family member with HD, I have become more involved with trying to educate family members and co-workers about HD.

I feel I should begin by sharing why I am so interested in teaching health care workers about Huntington Disease. I experienced in my own work environment how people respond to persons with HD when they do not understand the disease itself.

I have done a lot of teaching with them as my colleges to help them understand about the process of HD and help them feel more comfortable caring for some of our clients.

Thus helping the client receive the proper and needed care and understanding at a stressful time in their life. I feel I have a lot to share with others due to my own personal experience in caring for my grandmother who has HD and is presently in the late stages.

I want people to understand and care about what persons with HD and their families go through and feel comfortable with them. As with my family history I may be dealing with my mother developing HD some day and even possibly I may be the person with HD on the receiving end of care some day too.

So I think by teaching what I know will help others with HD, their families and the caregivers caring for them.

I Hope You Will Be Able To Use This Information In Caring For A Person With HD. Remember.   We Are All Human Beings.