Huntington's Disease For Families

Dressing Tips

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Dressing Tips
From Nursing Care In Late Stage Huntington Disease

As with all activities of daily living it is important not to do everything for a person with Huntington's Disease, this is even the case with dressing.

Always allow them to do as much as possible on their own, no matter how minimal it is. By allowing them to do even a minimal task, such as pulling their shirt over their head, allows and helps them feel some independence.

Persons with Huntington's Disease tend to perspire more so their clothes should be changed and washed often. Though they perspire more, which could be related to medications, they more often are more comfortable in a more cooler room, in the winter they may wish to wear thin cotton clothing and even have a fan on them.

This all being related to altered temperature regulation and aspects of the disease related to metabolism.

As the disease progresses a small number of people experience recurring high fevers, reaching as high as 40 degrees Celsius at times and even higher. Many of these fevers occur despite a physicians best effort to identify an infection. So it is important to keep an eye on temperatures in the room and consult a doctor if the client experiences a temperature, so infections can be ruled out or if one present, and treated immediately.

They need to have clothes that are easy to put on and take off, loose enough to be accommodating to the chorea movements and withstand frequent washings. Due to difficulty with fine motor tasks, clothing with zippers and buttons are difficult for a person with Huntington's early on, so tracksuits are much easier to maneuver.

Clothing with patterns on them camouflage spills and stains and fashionable patterned scarfs catch drool as effectively as adult bibs.