HDSA
HDSA is the National organization for Huntington's Disease
in the United States.
Huntington's Disease Society of America
505 Eighth Avenue, Suite 902
New York, NY 10018
Phone:
(800) 345-HDSA (345-4372)
Info Email: hdsainfo@hdsa.org
National office:
Receive Updates
Cash Donations to HDSA:
87% of each unrestricted gift to HDSA will be used
to support HDSA's research, education and family services programs.
Donors also have the right to restrict their gifts for a specific program or program-matic area.
When this is done, 100% of the restricted donation is used for that program.
All Cash contributions are deductible to the fullest extent of the law.
Donations Through Employers
If you want to know more about how to give to Community
Health Charities or include us in your employee giving campaign - visit the Employee Giving Campaigns section of this site. If you would like to find how Community
Health Charities works in your community, visit our Local Offices.
Local offices are affiliates of Community Health
Charities that work within the community to
create strategic alliances and local workplace giving campaigns. These affiliates link employees with their local health charities and services. Please contact our State Affiliates to find out how Community Health Charities works in your community. Or you can use the
NOTE: If you use the state locator you'll have to hit your "back button" to return to this
page.
Check with your United Way local office
to see if Huntington's Disease Society is
listed and request your employee designated your contributionsto United Way to the code provided for HD.
For example:
4221 is Florida code
0526 is New York is for HDSA
050038 is Texas code for HDSA
6009 is Virginia/DC code ifor HDSA
HD
Roster
Give the greatest gift to research and future generations. For information on donating
a brain or storing DNA samples please see visit the Roster's website.
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Advocacy
HDSA is engaged in efforts to protect the rights of our HD families, in addition
to bringing into focus the difficult situations these families encounter to the attention
our federal, state and local elected officials through advocacy. Educating elected officials
and community leaders about the needs of those facing this devastating degenerative disease is
one of the best tools we have at this time in the fight against HD. Read how YOU can
help
Advocacy Resources ,<- click here if you'd like to learn more about capitol hill basics,
letter writing, register to vote, etc.
Map of Congress <-click on for map of US to locate your state respresentatives.
Media
Huntington's Disease Society of America- Latest information
released to the Press by the HDSA
Media Guide (National & Local)
Find and contact national and local media search by Local/Zip,
Individual, Organization or by clicking on your state in the map.
Clinical Trials & On-going Research
HSG is a non-profit group of physicians and other health care providers from medical centers in the U.S.,
Canada, Europe and Australia, experienced in the care of Huntington patients and dedicated to clinical research of Huntington's
disease.
The Huntington Project will bring
together the entire clinical research community, including government and industry, to engage in the decision-making process
required to develop treatments that make a difference for HD.
European HD Network provides a platform for professionals and people affected by HD and their
relatives to facilitate working together throughout Europe
Studies listed in the database are conducted primarily in all 50 States and in over 90 countries.
Other HD Websites
The Hereditary Disease Foundation
2444 Wilshire Boulevard, #511
Santa Monica, CA. 90403
Phone: (310) 575-9656
A non-profit, basic-science organization dedicated to the cure of genetic
disease. 100% of all publicly donated funds is directed to the support of biomedical research. HDF focuses on Huntington's
disease.
Stanford University
HOPES
HOPES is a team of faculty and under-graduate students at Stanford University dedicated to
making scientific information about Huntington's Disease (HD) more readily accessible to the public.
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